The Roller Coaster Continues

The morning was spent prepping for a day of tests. Ella had blood drawn at 10AM, then the EEG and IV removed, the MRI at noon, then the spinal tap. She has spent the rest of the day recovering. We are awaiting the results of all, but expect them tomorrow morning. Ella started smiling and laughing at us this afternoon, something we hadn't seen in more than 3 weeks. She had been seizure-free since starting the Keppra until 5:30pm today. Unfortunately, this has been her pattern, a medication change, 48 hrs. without seizures, then back to where we started. The roller coaster continues. She has had 2 more since 5:30pm. They've called the doctor and we are in a holding pattern. If the seizures cluster, increase in frequency or intensity, they'll consult with the neurologist again as to the appropriate course of action. There was talk of us going home tomorrow, but now that's up in the air. Yesterday, the neurologist had said if Keppra didn't work, ACTH was the only other option, which means more time in the hospital for monitoring, training, and more side effects. Thanks for all the phone calls, emails, messages,etc. A special shout out to my peeps at Arvest for the nice azalea. Thank you, Stefanie :) The receptionist was overrun by pollenating insects. I apologize for the run-on paragraph. The Tab and Enter button on this keyboard don't work.We are physically and emotionally drained, but we are hanging in.