Could you join us in praying that God will be glorified in this, that we will lean not on our own understanding or strength but fully on God, that Ella will remain free from seizures, that we will continue to have unity in our marriage, that the accuser will have no foothold to try to point blame on us or stir up guilt, that we will have answers to our (many) questions, and that our boys will be insulated from any fears/anxiety they may sense in us?
Also, I am trying to work extra hours this week to make up for the hours I missed while we were in the hospital this weekend and perhaps will continue to work extra in the weeks to follow as we anticipate the medical costs we've incurred/will soon incur; please pray for grace for the boys as I am out of the house a little more, especially Cooper as he is really struggling with separation anxiety right now anyway; and pray for favor for Chris as he is the caregiver when I am gone.
Finally, I am struggling through some of the strong emotions I've felt since this journey began last week, emotions that I shoved down inside while in "survival mode" in the hospital. I don't think I've ever been more scared or felt more helpless than I did as I observed Ellie's major seizure on Friday morning. It continues to affect me, and I pray that God would help me release it soon (though I'm admittedly afraid that if I try to forget that I'm somehow not being a good mother to Ella--does that make sense? I'm also afraid to try to close that off only to have it ripped back open if she has another seizure.) I would like to deal with these emotions in a genuine way while leaving room/pacing myself for the possibility that we are not "through the woods" just yet. I believe that through Christ alone, and with His perfect provision of just enough manna for one day at a time, we will be sustained, no matter the outcome.
1 comment:
How is Ella doing? We have a child that's almost 5 and has PMG on his front left lobe. It's been a tough 4 year battle but we are now starting to beat the seizures. We are seeing some experts at Boston Children's hospital and we have done everyting except resection surgery. We did do the ACTH and it worked amazing. Don't think to much about it, it will work just try to make sure no one gets her very sick while on the injectable. We just put a VNS therapy in my boy 8 months ago and it's been extremely helpful. More so than any medication (which we've tried over 10, or 5 in combination) There's some great doctors in Boston that specialize in PMG if you ever want a second opininon. Please let us know how you are making out. We understand everything you are going through. Don't blame anybody, just try to get the best treatment. Please let me know if we can do anything for you. Best of luck,
The Hagerty's
Mansfield MA
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